Media Summary: Greg Grunberg discusses the Epilepsy Foundation's For links to REN's member organizations and websites click on this link: Lisa Soeby, co-founder of Hope for Hypothalamic Hamartomas, shares why she believes it is important for patients and caregivers ...

Rare Epilepsy Network - Detailed Analysis & Overview

Greg Grunberg discusses the Epilepsy Foundation's For links to REN's member organizations and websites click on this link: Lisa Soeby, co-founder of Hope for Hypothalamic Hamartomas, shares why she believes it is important for patients and caregivers ... We are thrilled to announce a new video series introducing REN's many Members and Partners. Find v-ATPase Alliance at ... We are thrilled to announce a new video series introducing REN's many Members and Partners. Find PAME at ... Karen Groff, whose son has Lennox-Gastaut Syndrome, talks about how her family connected with other people who have a

We are thrilled to announce a new video series introducing REN's many Members and Partners. Find FAST at ... In this episode of the KCNA2 and rare epilepsy podcast, Nancy is joined by leaders from the We are thrilled to announce a new video series introducing REN's many Members and Partners. Find CRELD1 Warriors at ... We are thrilled to announce a new video series introducing REN's many Members and Partners. Find CureGRIN at ... Day 1 - Speaker 2: No Stone Unturned: What to Try When Nothing Has Worked with David Burdette, MD (Epileptologist), Peter ... We are thrilled to announce a new video series introducing REN's many Members and Partners. Find Child Neurology Foundation ...

Photo Gallery

Rare Epilepsy Network
Meet the Members of the Rare Epilepsy Network
Hope for HH Says Register for the Rare Epilepsy Network
Meet v-ATPase Alliance & Co-Founder Ana Rita Moreira
Meet Partners Against Mortality in Epilepsy (PAME)  and its dedicated Leaders
Karen Groff on Epilepsy Foundation's Rare Epilepsy Network
Meet FAST Foundation and its dedicated Leaders
From Diagnosis to Advocacy: Inside the Rare Epilepsy Network (REN)
Meet CRELD1 Warriors and its Founder Adam Clatworthy
2022 Upper Midwest Rare Epilepsies Conference
Meet CureGRIN Foundation and it's Founder Meagan Collins
Upper Midwest Rare Epilepsies Conference - No Stone Unturned Panel
View Detailed Profile
Rare Epilepsy Network

Rare Epilepsy Network

Greg Grunberg discusses the Epilepsy Foundation's

Meet the Members of the Rare Epilepsy Network

Meet the Members of the Rare Epilepsy Network

For links to REN's member organizations and websites click on this link: https://www.rareepilepsynetwork.org/members-partners ...

Hope for HH Says Register for the Rare Epilepsy Network

Hope for HH Says Register for the Rare Epilepsy Network

Lisa Soeby, co-founder of Hope for Hypothalamic Hamartomas, shares why she believes it is important for patients and caregivers ...

Meet v-ATPase Alliance & Co-Founder Ana Rita Moreira

Meet v-ATPase Alliance & Co-Founder Ana Rita Moreira

We are thrilled to announce a new video series introducing REN's many Members and Partners. Find v-ATPase Alliance at ...

Meet Partners Against Mortality in Epilepsy (PAME)  and its dedicated Leaders

Meet Partners Against Mortality in Epilepsy (PAME) and its dedicated Leaders

We are thrilled to announce a new video series introducing REN's many Members and Partners. Find PAME at ...

Karen Groff on Epilepsy Foundation's Rare Epilepsy Network

Karen Groff on Epilepsy Foundation's Rare Epilepsy Network

Karen Groff, whose son has Lennox-Gastaut Syndrome, talks about how her family connected with other people who have a

Meet FAST Foundation and its dedicated Leaders

Meet FAST Foundation and its dedicated Leaders

We are thrilled to announce a new video series introducing REN's many Members and Partners. Find FAST at ...

From Diagnosis to Advocacy: Inside the Rare Epilepsy Network (REN)

From Diagnosis to Advocacy: Inside the Rare Epilepsy Network (REN)

In this episode of the KCNA2 and rare epilepsy podcast, Nancy is joined by leaders from the

Meet CRELD1 Warriors and its Founder Adam Clatworthy

Meet CRELD1 Warriors and its Founder Adam Clatworthy

We are thrilled to announce a new video series introducing REN's many Members and Partners. Find CRELD1 Warriors at ...

2022 Upper Midwest Rare Epilepsies Conference

2022 Upper Midwest Rare Epilepsies Conference

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Meet CureGRIN Foundation and it's Founder Meagan Collins

Meet CureGRIN Foundation and it's Founder Meagan Collins

We are thrilled to announce a new video series introducing REN's many Members and Partners. Find CureGRIN at ...

Upper Midwest Rare Epilepsies Conference - No Stone Unturned Panel

Upper Midwest Rare Epilepsies Conference - No Stone Unturned Panel

Day 1 - Speaker 2: No Stone Unturned: What to Try When Nothing Has Worked with David Burdette, MD (Epileptologist), Peter ...

Meet Child Neurology Foundation and its dedicated Leaders

Meet Child Neurology Foundation and its dedicated Leaders

We are thrilled to announce a new video series introducing REN's many Members and Partners. Find Child Neurology Foundation ...